This Angel Wore Glasses
by
Book Details
About the Book
Losing a child is the worst possible life event that a person can endure. This Angel Wore Glasses is how a family dealt with their child’s life shortening illness. It is looking at life through the eyes of a little boy afflicted with a rapid aging disorder.
It is one little boy’s story; sometimes poignant, other times funny. It is the telling of the story meant to be shared by any family who has ever lost a child. It is a story about the earth life of an Angel and how his family managed to survive his death.
About the Author
Pat Cahill was born in New York City and lived on the upper West Side till she married her husband Kevin in 1967. She worked for the New York Times for thirteen years and while there, gave birth to their second, third, fourth and fifth children. Scott (the Angel) was her second child. Over the course of eight years, he was misdiagnosed twice and then finally when Pat was pregnant with her fifth child, he was diagnosed with Cockayne Syndrome.
While still working at the Times, Pat started a support group called Share and Care (1981) which at first consisted of three families who had children with Cockayne Syndrome (a rapid-aging disorder). Today there are approximately 900 families worldwide.
Pat worked for Citibank for twenty years before becoming disabled with osteoarthritis.
She is still involved with Share and Care and is one of the contact people for the bereaved.